Welcome! Read Me!

This blog is created to give you a central location to answer any questions you have about my current and upcoming treatments and reactions. It is also created to help me make Lemonade out of the Lemons I have been given, so I will keep this as positive as I can.

Friday, January 7, 2011

Surgery, etc.

I have said it before and I will say it again. I Hate Waiting!!!! In the beginning of this whole Cancer business I had a Whole Lot of Hurry Up and Wait! You need this test - but we won't have the results for 3 days. You need to meet with this specialist - but you can't get in until next week... you know the drill. Since I started Chemo I have been in a bit of a holding pattern as far as surgery is concerned. We didn't want to do any surgery until after Chemo was completed, and we wouldn't know how the tumor was responding to the treatment until we were into it and nearly done so we couldn't necessarily plan what kind of surgery we would want until the end either. We waited as long as we could. Today we met with my surgeon and we had a lot of questions... and I think we actually got them all answered, to some extent. At least it was enough to keep me sane. (Or more sane than I was before I went in, since I doubt I will ever be completely sane)
We will likely be going in for surgery the first week of March, unless scheduling conflicts change our plans. It will be a Full/Double Mastectomy as well as the removal of the Lymph Nodes on my right side. We did discuss the possibility of just having the Mastectomy on the affected side, but for my peace of mind, since I have that 'gene mutation of uncertain circumstances' and other reasons we opted to just go ahead with the double mastectomy. After the surgery I will likely be pretty well out of commission for at least a week but could be closer to 2-3 weeks depending on how my body reacts. The hardest part of this process (besides the pain and recovery of course) will be the fact that I will not be able to lift my girls, or anything else 20 lbs or more. And that will be hard on all of us. The girls will likely spend a lot of time with Family during this recovery time, how much, I don't know yet. But, I am sooo thankful that I have a lot of family nearby that can help out. After at least 3 weeks of recovery I will start my Radiation regimen which will likely consist of 5 days per week, for 6 weeks. After a break of about 3 months after radiation I will go in for surgery again to "fix what they broke" :) and I can maybe consider myself done with the ugly stuff by the end of the year. Now if only everything works like clockwork and falls into place exactly as it should be. It can happen! A girl can dream... right?
Soooo we have a little bit of a road map for then next several  months and that makes me feel better. Even though I am not excited about going through ANY of these steps, I am more than happy to get them over with so that I can hopefully not have to deal with them again. The next step is getting Actual dates for these things to start so that I can feel even better.
In the mean time... Chemo #5 is on the 11th and then I only have 1 more left on Feb 1st! I AM ALMOST DONE!!!!! HOORAY!!!! THE END IS IN SIGHT!!!


  1. It's good to know what is ahead, even if it isn't easy. You have done so well so far. You will make it! You haven't called me to help yet so I have plenty of use left in me. Always let me know what I can do. Hope everything happens quickly so it's over soon :) I will be putting your name on the prayer roll (again) at the temple tomorrow. Love you!

  2. From my experience, I can tell you that the hardest part (the Chemo) is almost over. Even the surgery wasn't that bad but I didn't have a bilateral (wish I had though, I feel so unbalanced now) so I hope your recovery is quick. Are you planning to do reconstruction? Radiation was not hard at all except it makes you tired and you might have some burns at the end but they heal very quickly. Take care. I'll be thinking about you.

  3. A friend in my stake had lymph nodes removed and she couldn't "support her girls" for a while. She wore a lot of jackets and draping scarfs. I take for granted that if I had to do it, it wouldn't be so obvious with my "small set" lol. I somewhat know how you feel about the hurry and wait. I was told I'll need back surgery probably by the time I'm 40, so that a long wait for me. As always, we maintain you in your prayers.

  4. i'm so happy things are going as well as the can be!!! still praying for you!

  5. Thanks everyone!
    Suz, don't worry I will be calling you. :)
    LaVonda, I really hope you are right!
    Kristi, I hadn't thought of that part... Good to know early so I can maybe look for other things that might help in that area.
    Manda! Thanks so much for the Prayers! I know that that is the only thing keeping me upright most days! :) Hugs to everyone!