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This blog is created to give you a central location to answer any questions you have about my current and upcoming treatments and reactions. It is also created to help me make Lemonade out of the Lemons I have been given, so I will keep this as positive as I can.







Wednesday, May 22, 2013

Answers must be overrated....

After a week of waiting for the Biopsy results to come in... we find out.... NOTHING.... It looks like the Doc who did the Biopsy missed and got some normal tissue. So that test is a complete bust. I love waiting so much that I get to do it again. My Oncologist is consulting with a pulmonary specialist in order to determine the best route to get to the mass to get the biopsy result that we need. Hopefully in the next day or tow we will have this scheduled. I am hoping that we can put a rush on it so that we can get answers without having to wait for another week again for a result.

In the mean time... We are going to try to move forward to get ready for Chemo for when the time comes. I am going to have a port placed so that I don't have to deal with the consistent IV sticks. This will be nice with my history. I was supposed to go in tomorrow for this, but something is awry in the scheduling so I may be going in on Friday instead. I am still trying to get to the bottom of that. I hope to have that question answered sometime early tomorrow so I can plan around it.

The rest of the plan is coming together tentatively. All things going as planned, I will be starting Chemo on June 5th. Unless the biopsy results come back drastically different than we expect we will have Chemo once a week for 2 weeks and then have a week break. This will be Gemzar. He is also looking into using an Oral Chemo, Xeloda, that I would have to take every day for 2 weeks. Depending on cost I may opt to just do an IV form, Carboplatin, with the first Gemzar. The bonus to this is that my health benefit is maxed out so I wouldn't have any out of pocket for it, for the Pill it would come out of my Prescription benefit and I would have to pay the co pays on that. Not sure what that would be yet, but definitely something we are looking into.

In addition to this I will have to take a bone strengthener. Since I have this in my bones it has the tendency to make things more brittle. So every month I will get a nice boost with X-geva.

At Radiation they did a new little tweak it zinged me a little, and it made my face look like it was a giant Balloon. it went down eventually, but I am hoping it doesn't do that again. I look a little weird all swollen up like that.

So... All in all... it was a little of a humbug day. but at least I have something moving on... and some more Hurry up an wait....

5 comments:

  1. Oh dear. I'm sorry that you have to go through the biopsy again...let alone all the radiation and chemo!! I wish I had some good advice for you. I don't even have a sarcastic comment this time!

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  2. Very frustrating doing the biopsy over with out answer. Praying you have peace and answers.

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  3. This sucks! Stupid biopsy guy.....if I knew who he was I would kick him in the shin! I'm sorry that you have to go through all of this crap!

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  4. I'm so sorry to hear about all the craziness. And I'm happy to hear that they are going to have a port placed. They did that for me because of all the sticking and it was so NICE! Well, I mean if you can call any part of having to do Chemo nice, lol. But really, it was much better, just had to put on some numbing cream a few min prior to my treatment and I was good to go. Melanie, you are so strong! I can't even imagine going through what you are going through right now with kids and a hubby. Stay strong and know that I'm thinking of you and praying for you with all my heart! Love, Stephanie!

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  5. I am so sorry Mel! When I was getting my biopsies for my cervical cancer I had numerous results that were the same way. It is SOOOOO frustrating! All I can say is that the lord has a plan and for some reason you are not supposed to know just yet. I think it's that patience and long suffering thing. I am here to help in anyway possible. Even if it is just a shoulder to cry on. I also love to give hugs (Yes, Cayson got that trait from me). We love you tons and pray for you constantly!

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